May is Brain Tumor Awareness Month
MAY is Brain Tumor Awareness Month: give, share, raise awareness about glioblastoma
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Join us on June 5, 2025 for a celebration of ALL IN MY HEAD, by Jessica Morris, Brooklyn
Join us on June 5, 2025 in Brooklyn to celebrate Jessica Morris’s memoir of living with glioblastoma ALL IN MY HEAD. Readings and conversation with a GBM care partner and a top neuro-oncologist from Columbia University.
Conductor Michael Tilson Thomas stepping back due to a recurrence
Read the letter conductor Michael Tilson Thomas posted. He’s has been open about his glioblastoma diagnosis with his many fans around the world.
GBM Patient & Carer support and informational videos
Connect with others also affected by glioblastoma—give and get support, information, and resources.
Guide to sponsored patient support programs from pharma and device companies
Each year, Oncology Practice Management updates this comprehensive guide to sponsored patient support programs.
Running the Brighton Marathon to benefit OurBrainBank UK
Founder Jessica Morris’s family is running the Brighton marathon to raise funds for OurBrainBank!
OurBrainBank at SNO Annual Meeting 2024
This week, we presented preliminary results of our ambitious survey of 500+ people affected by GBM at the Society for Neuro-Oncology annual conference.
OurStoryBank: Erika talks about recurrence
Erika was thriving as a GBM survivor until it came back. She’s finding out that the options for recurrent GBM are few.
Adam Hayden: writer, philosopher, husband, father and long-term glioblastoma survivor (1982-2025)
Remembering Adam Hayden, a giant in the glioblastoma community (1982-2025)
OurBrainBank: 2025 in photos & videos
In 2025 we met with people living with GBM and their care partners, traveled to conferences, and began to tell the world about our GBM Disparities Survey.
A Harvard Medical School student’s view: OBB at the Soc. for Neuro-Oncology conference
“It was incredibly energizing to see how OBB’s work is not only documenting problems but also driving conversations and initiatives that could improve access to care and quality of life for GBM patients across diverse communities.” Jacob Ellen writes about his experience with the SNO 2025 conference where OurBrainBank presented two posters and won an award.
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