OurStoryBank: Erika talks about recurrence
Erika was thriving as a GBM survivor until it came back. She’s finding out that the options for recurrent GBM are few.
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Understanding the condition and connecting with others with the illness can help you feel empowered on your GBM journey.
In 2024, we collected data on how people with GBM are treated in the USA, where do you live? Did you get high-quality treatment? Are there disparities depending on location and resources? Read the results.
Doctors will often say ‘Don’t Google GBM’ because the information out there can be disheartening.
GBM is one of the most aggressive cancers and one of the hardest to treat, and as a result survival rates are low, with just a 5% five-year survival rate. Existing treatments are not a cure, but a way to extend life. The current standard of care is unlikely to remove the entire tumor. It might no longer be visible following treatment, yet tiny pieces can remain and for the majority of people the tumor returns. On your GBM journey you should equip yourself with as much knowledge as possible to ensure you are aware of the options available beyond standard treatments.
STORIES.
Adam Hayden: writer, philosopher, husband, father and long-term glioblastoma survivor (1982-2025)
Remembering Adam Hayden, a giant in the glioblastoma community (1982-2025)
STORIES.
OurStoryBank: Erika talks about recurrence
Erika was thriving as a GBM survivor until it came back. She’s finding out that the options for recurrent GBM are few.
Adam Hayden: writer, philosopher, husband, father and long-term glioblastoma survivor (1982-2025)
Remembering Adam Hayden, a giant in the glioblastoma community (1982-2025)
