Glioblastoma is too often put in the ‘too difficult’ box. Survival rates have remained virtually the same for decades. We need more research, more urgency and more attention NOW.
JUST
JUST
ADVOCATING FOR GBM
Through our patient-centred advocacy, we hope to inspire institutional, financial, medical and regulatory reform. Our GBM Bill of Rights, developed by those affected by GBM, is designed to empower people and inspire them to call for a better approach to GBM care.
Together with our allies and partners in other GBM and brain tumor organisations, we know that we are stronger together than apart. If we join forces we can ensure people with GBM have their voices heard.
Through our patient-centred advocacy, we hope to inspire institutional, financial, medical and regulatory reform. Our GBM Bill of Rights, developed by those affected by GBM, is designed to empower people and inspire them to call for a better approach to GBM care.
Together with our allies and partners in other GBM and brain tumor organisations, we know that we are stronger together than apart. If we join forces we can ensure people with GBM have their voices heard.
TARGETED CAMPAIGNS
OurBrainBank’s glioblastoma survey found younger respondents (under 50) had a longer wait as did urban residents.
We’re presenting these findings and others at the ASCO Quality Care Symposium in Boston, October 2026.
Lakshmi Nayak, MD, of Dana-Farber Cancer Institute. Dr. Nayak explains LIFT — Life Insights From Technology — and how researchers are exploring daily-life patterns and social support for people with GBM and their care partners.
What does integrative oncology actually mean for someone living with a brain tumor?
The FDA has approved Pixclara®, the first FDA-approved FET-PET imaging drug for glioma. Here’s what the approval may mean for patients and care partners.
My mother-in-law Karla told me she had a brain tumor before she told my wife Michelle. Karla and Michelle were inseparable. Karla had Michelle at just 18, so in many ways, they grew up together. Michelle shared everything with her mom because Karla was her best friend…
OurBrainBank’s glioblastoma survey found younger respondents (under 50) had a longer wait as did urban residents.
We’re presenting these findings and others at the ASCO Quality Care Symposium in Boston, October 2026.
Lakshmi Nayak, MD, of Dana-Farber Cancer Institute. Dr. Nayak explains LIFT — Life Insights From Technology — and how researchers are exploring daily-life patterns and social support for people with GBM and their care partners.
What does integrative oncology actually mean for someone living with a brain tumor?
The FDA has approved Pixclara®, the first FDA-approved FET-PET imaging drug for glioma. Here’s what the approval may mean for patients and care partners.
My mother-in-law Karla told me she had a brain tumor before she told my wife Michelle. Karla and Michelle were inseparable. Karla had Michelle at just 18, so in many ways, they grew up together. Michelle shared everything with her mom because Karla was her best friend…
