OurBrainBank at SNO Annual Meeting 2024
This week, we presented preliminary results of our ambitious survey of 500+ people affected by GBM at the Society for Neuro-Oncology annual conference.
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Glioblastoma is too often put in the ‘too difficult’ box. Survival rates have remained virtually the same for decades. We need more research, more urgency and more attention NOW.
13,000
PEOPLE ARE DIAGNOSED WITH GLIOBLASTOMA IN THE US EACH YEAR
5%
FIVE-YEAR SURVIVAL RATE
JUST
5%
OF RESEARCH FUNDING APPLICATIONS SUCCEED
13,000
PEOPLE ARE DIAGNOSED WITH GLIOBLASTOMA IN THE US EACH YEAR
5%
FIVE-YEAR SURVIVAL RATE
JUST
5%
OF RESEARCH FUNDING APPLICATIONS SUCCEED
ADVOCATING FOR GBM
GBM receives too little attention and resources. A big part of what OurBrainBank does involves patient advocacy and raising awareness for GBM.
Through our patient-centred advocacy, we hope to inspire institutional, financial, medical and regulatory reform. Our GBM Bill of Rights, developed by those affected by GBM, is designed to empower people and inspire them to call for a better approach to GBM care.
Together with our allies and partners in other GBM and brain tumor organisations, we know that we are stronger together than apart. If we join forces we can ensure people with GBM have their voices heard.
Through our patient-centred advocacy, we hope to inspire institutional, financial, medical and regulatory reform. Our GBM Bill of Rights, developed by those affected by GBM, is designed to empower people and inspire them to call for a better approach to GBM care.
Together with our allies and partners in other GBM and brain tumor organisations, we know that we are stronger together than apart. If we join forces we can ensure people with GBM have their voices heard.
TARGETED CAMPAIGNS
OBB plans to focus on each one of the points flagged up in the GBM Bill of Rights and push for its fulfilment. We will not rest until we see improvements in each of the 11 rights.
LATEST NEWS.
OurBrainBank benefit event in Connecticut Nov. 22, 2024
A good time was had by all at a festive evening of fun, live music, great food and drinks — all to benefit OurBrainBank. Let us know if you’d like to host a benefit event for us.
OurBrainBank at AONN+ Annual Meeting 2024
OurBrainBank is at the AONN+ (Academy of Oncology Nurse & Patient Navigators) annual conference in Las Vegas. Stop by our booth and poster to meet Executive Director Kelli Duprey and learn about our survey of disparities in GBM treatment across the USA.
MyTumorID — learn about vital tumor testing
Every brain tumor experience is unique, and every patient deserves a better chance at survival, a better chance at an adequate quality of life, and the best information available to make decisions for their treatment.
Demand More! Help us make the Glioblastoma Bill of Rights a reality
Our survey showed serious disparities in GBM care across the USA. Let’s tell the country and make change!
LATEST NEWS.
OurBrainBank at SNO Annual Meeting 2024
This week, we presented preliminary results of our ambitious survey of 500+ people affected by GBM at the Society for Neuro-Oncology annual conference.
OurBrainBank benefit event in Connecticut Nov. 22, 2024
A good time was had by all at a festive evening of fun, live music, great food and drinks — all to benefit OurBrainBank. Let us know if you’d like to host a benefit event for us.
OurBrainBank at AONN+ Annual Meeting 2024
OurBrainBank is at the AONN+ (Academy of Oncology Nurse & Patient Navigators) annual conference in Las Vegas. Stop by our booth and poster to meet Executive Director Kelli Duprey and learn about our survey of disparities in GBM treatment across the USA.
MyTumorID — learn about vital tumor testing
Every brain tumor experience is unique, and every patient deserves a better chance at survival, a better chance at an adequate quality of life, and the best information available to make decisions for their treatment.
Demand More! Help us make the Glioblastoma Bill of Rights a reality
Our survey showed serious disparities in GBM care across the USA. Let’s tell the country and make change!
