OurStoryBank: Share your glioblastoma story
OurStoryBank: Jessica Morris’s Story
A GBM diagnosis is daunting and isolating, but you are not alone. OurBrainBank is with you on your GBM journey.
OurBrainBank provides a bank of useful information about the disease and treatments to help patients navigate the complex world of GBM. We also offer advice on how to find support and connect with others.
If you’ve just been diagnosed, read about the standard treatment for glioblastoma and the 12 questions to ask your doctor.
Getting support: the organisations and charities who provide information and practical help, and how to link up with other people who have GBM.
Understand the science behind this type of cancer, genomic testing, clinical trials and novel treatments.
Information for caregivers, including understanding the challenges and how to look after yourself.
A GBM diagnosis is daunting and isolating, but you are not alone. OurBrainBank is with you on your GBM journey.
OurBrainBank provides a bank of useful information about the disease and treatments to help patients navigate the complex world of GBM. We also offer advice on how to find support and connect with others.
If you’ve just been diagnosed, read about the standard treatment for glioblastoma and the 12 questions to ask your doctor.
Getting support: the organisations and charities who provide information and practical help, and how to link up with other people who have GBM.
Understand the science behind this type of cancer, genomic testing, clinical trials and novel treatments.
Information for caregivers, including understanding the challenges and how to look after yourself.
Read about our GBM Bill of Rights and OBB advocacy campaigns to improve treatment and care of people with GBM. Create change with us
In June 2017 OurBrainBank’s founder Jessica Morris attended the New York launch of the Biden Cancer Initiative, the philanthropic scheme set up by Joe and Jill Biden in honour of Joe’s son Beau who had died of GBM. She talked about OBB’s mission to move GBM from terminal to treatable, powered by patients. “We need a sense of urgency!” she told him.
Read about our GBM Bill of Rights and OBB advocacy campaigns to improve treatment and care of people with GBM. Create change with us
In June 2017 OurBrainBank’s founder Jessica Morris attended the New York launch of the Biden Cancer Initiative, the philanthropic scheme set up by Joe and Jill Biden in honour of Joe’s son Beau who had died of GBM. She talked about OBB’s mission to move GBM from terminal to treatable, powered by patients. “We need a sense of urgency!” she told him.
We believe that the key to future personalised GBM treatments – and longer, quality life expectancy – lies in the genomic sequencing of patients’ tumors. We will strive for EVERY GBM patient to be offered the chance to have samples of their tumor taken and sent for sequencing.
There’s a ticking time bomb in my head. I’m learning to live with it.
Like most people in treatment for brain tumors in the United States, I’ve had to adapt to a mind that feels very different from the one I once knew.
Two substantial health reports are out today in the UK.
Our survey showed serious disparities in GBM care across the USA. Let’s tell the country and make change!
We have been collaborating in the UK with a group of brain tumour charities and a non-profit organisation to ensure that patients have timely access to innovative treatments.
There’s a ticking time bomb in my head. I’m learning to live with it.
Like most people in treatment for brain tumors in the United States, I’ve had to adapt to a mind that feels very different from the one I once knew.
Two substantial health reports are out today in the UK.
Our survey showed serious disparities in GBM care across the USA. Let’s tell the country and make change!
We have been collaborating in the UK with a group of brain tumour charities and a non-profit organisation to ensure that patients have timely access to innovative treatments.