We’re a patient-led movement dedicated to moving glioblastoma (GBM) from terminal to treatable. We’re on a mission to support, inform and empower every person who has GBM. We’re the only GBM-focused non-profit conducting patient/carer-led data collection and research.

Read about DANO-GBM, our current data collection project, and our pilot study, which was presented at international conferences including SNO (Society for Neuro-Oncology) and ASCO (American Society of Clinical Oncology).

#UseYourBrains!

We've launched our #UseYourBrains! campaign in the UK. Our whitepaper highlights 5 steps to improve GBM treatment in the UK and ensure patients benefit from the personalised cancer treatment revolution, including calls for universal genomic sequencing, reliable patient information and prioritising funding for research. Find out more.

YOU & GBM.

A GBM diagnosis is daunting and isolating, but you are not alone. OurBrainBank is with you on your GBM journey.

OurBrainBank provides a bank of useful information about the disease and treatments to help patients navigate the complex world of GBM. We also offer advice on how to find support and connect with others.

If you’ve just been diagnosed, read about the standard treatment for glioblastoma and the 12 questions to ask your doctor.

Getting support: the organisations and charities who provide information and practical help, and how to link up with other people who have GBM.

Understand the science behind this type of cancer, genomic testing, clinical trials and novel treatments.

Information for caregivers, including understanding the challenges and how to look after yourself.

YOU & GBM.

A GBM diagnosis is daunting and isolating, but you are not alone. OurBrainBank is with you on your GBM journey.

If you’ve just been diagnosed, read about the standard treatment for glioblastoma and the 12 questions to ask your doctor.

Getting support: the organisations and charities who provide information and practical help, and how to link up with other people who have GBM.

Understand the science behind this type of cancer, genomic testing, clinical trials and novel treatments.

Information for caregivers, including understanding the challenges and how to look after yourself.

CREATE CHANGE.

Read about our GBM Bill of Rights and OBB advocacy campaigns to improve treatment and care of people with GBM. Create change with us

GBM is the most aggressive and fatal type of brain tumor
GBM does not get the attention it so obviously deserves
Only 5% research proposals accepted
Cracking GBM could help crack other cancers
Turning GBM from terminal to treatable, powered by patients

In June 2017 OurBrainBank’s founder Jessica Morris attended the New York launch of the Biden Cancer Initiative, the philanthropic scheme set up by Joe and Jill Biden in honour of Joe’s son Beau who had died of GBM. She talked about OBB’s mission to move GBM from terminal to treatable, powered by patients. “We need a sense of urgency!” she told him.

CREATE CHANGE.

Read about our GBM Bill of Rights and OBB advocacy campaigns to improve treatment and care of people with GBM. Create change with us

GBM is the most aggressive and fatal type of brain tumor
GBM does not get the attention it so obviously deserves
Only 5% research proposals accepted
Cracking GBM could help crack other cancers
Turning GBM from terminal to treatable, powered by patients

GBM Bill of Rights. Created by people living with GBM and their families.

We don’t think that treatment for GBM is good enough.

We believe that the key to future personalised GBM treatments – and longer, quality life expectancy – lies in the genomic sequencing of patients’ tumors. We will strive for EVERY GBM patient to be offered the chance to have samples of their tumor taken and sent for sequencing.