Read about advances being made in treatments, navigation help, sharing stories, and more.
NEWS January 2024
Take the GBM survey online or by phone at 909-274-9486
OurBrainBank conducts patient and care-giver led research and data collection. In 2020, we developed the Glioblastoma Bill of Rights to ask that every person with GBM has access to the same quality of care regardless of geographical location or financial situation. Read more.
In 2022-23, we surveyed our community about these rights and found alarming results. Based on this, we determined that we needed a larger survey sample size plus input from doctors experienced with GBM to be able to raise noise about these healthcare disparities. We will recruit 500 patients and carers across the USA.
Dr. Quinn Ostrum (Duke), Dr. Fabio Iwamoto (Columbia) and Dr. Lakshmi Nayak (Dana-Farber) will lead this project along with OurBrainBank. Survey Global Healthcare is managing the survey.
The survey should take about 10 minutes to complete. We’re seeking people living with GBM, current caregivers, or those who lost a loved one within the last year or so (2023-4). At the end, you will have the opportunity to volunteer for a follow-up phone call so we can learn more about your GBM journey.
If you need help filling out the survey, please call/text +1-909-274-9486 or email email@example.com.
Thank you, we are grateful for your time.