We focus on GBM —one of the most complex and aggressive brain cancers — because overcoming one of the toughest cancers may be the key to cracking them all.
PROVIDING A HOME.
We work to provide a home for those with GBM and their caregivers, families and friends, where together we can learn and feel empowered to have a say in our own care. We are not alone.
NEW AND BETTER TREATMENT.
We’re passionate about advocating for new and better treatments for people with GBM, hoping to inspire real change. We believe in widening access to the latest experimental treatments for everybody, not just those who live near a medical center of excellence or who can afford it.
HARNESSING THE DATA.
We seek new ways of harnessing the data that patients and caregivers themselves report, using it to drive forward research and involve people in their own GBM journeys.
OUR COMMUNITY.
OurBrainBank is designed by, for, and with people with glioblastoma. We work across the US and UK, but seek to make global connections and continue to expand our ever-growing community of people affected by GBM.
You can join our community through our Facebook page, our Facebook Group, or on Twitter, Instagram, and TikTok. We exchange ideas, talk about symptoms and treatments, and give — and get — support. Our YouTube channel has helpful and informative videos.
OUR FOUNDER.
OurBrainBank was the fulfilment of our founder Jessica Morris’s lifetime of campaigning and pushing for social change. Jessica died in June 2021.
Jana Bennett, a ground-breaking television executive on both sides of the Atlantic, was an active member of the OurBrainBank board until her death in January 2022.
OUR FOUNDER.
OurBrainBank was the fulfilment of our founder Jessica Morris’s lifetime of campaigning and pushing for social change. Jessica died in June 2021.
Jana Bennett, a ground-breaking television executive on both sides of the Atlantic, was an active member of the OurBrainBank board until her death in January 2022.
LEADERSHIP
Our boards include members from the worlds of media, healthcare, tech, strategy, business, and communications — some living with GBM, some caregivers, all touched by the disease.
Chair. Chief reporter, The Guardian US, and husband of GBM patient Jessica Morris
ED PILKINGTON
Executive Director. Senior pharmaceutical executive
KELLI DUPREY
Harvard medical student
JACOB ELLEN
Daughter of OurBrainBank founder Jessica Morris
TESS PILKINGTON
Analytics leader, and daughter of GBM patient Howard Onk (1954-2020)
KATE ONK
Consultant. Brain Tumor (Oligodendroglioma) Patient. Sister of GBM patient Fawad Hashmi (1979-1998)
Sundas Hashmi
Pharmaceutical Executive
Richard Micali
CEO. Proud aunt of brain cancer warrior Liam (2000-2020) and wife of GBM survivor Dave
Laura Simpson
Consultant. Lost family member to GBM
Edward Westfall
US BOARD.
Chair. Chief reporter, The Guardian US, and husband of GBM patient Jessica Morris
ED PILKINGTON
Executive Director. Senior pharmaceutical executive
KELLI DUPREY
Harvard medical student
JACOB ELLEN
Analytics leader, and daughter of GBM patient Howard Onk (1954-2020)
KATE ONK
Daughter of OurBrainBank founder Jessica Morris
TESS PILKINGTON
CEO. Proud aunt of brain cancer warrior Liam (2000-2020) and wife of GBM survivor Dave
Laura Simpson
Consultant. Brain Tumor (Oligodendroglioma) Patient. Sister of GBM patient Fawad Hashmi (1979-1998)
Sundas Hashmi
Consultant. Lost family member to GBM
Edward Westfall
Pharmaceutical Executive
Richard Micali
Chair. Co-founder, Carradale Futures
JAKE ARNOLD-FORSTER
Qualitative researcher and strategist, and daughter of GBM patient Jana Bennett (1955-2022)
ALEX BENNETT-CLEMMOW
TV and radio producer and journalist, and husband of GBM patient Jana Bennett (1955-2022)
RICHARD CLEMMOW
Advocate, and mother of GBM patient Laura Nuttall (1999-2023)
NICOLA NUTTALL
Founder of strategic advice firm Coulson Partners, and brother of GBM patient Debbie Coulson (1959-2018)
ANDY COULSON
Experienced communications professional
SIMON MATTHEWS
Co-founder of Inside Stuarts Head, Marketing & Communications Specialist and wife of GBM patient Stuart Bathers (1981-2021)
ESTHER BATHERS
Advocate, and wife of GBM patient, Laurent Antoine Viteau (1970 - 2021). Laurent’s father also died from GBM.
UZMAH YUNIS
A comms and reputation management expert who is currently supporting her brother through his battle with GBM
FIONA THORNE
UK BOARD.
Chair. Co-founder, Carradale Futures
JAKE ARNOLD-FORSTER
Qualitative researcher and strategist, and daughter of GBM patient Jana Bennett (1955-2022)
ALEX BENNETT-CLEMMOW
TV and radio producer and journalist, and husband of GBM patient Jana Bennett (1955-2022)
RICHARD CLEMMOW
Advocate, and mother of GBM patient Laura Nuttall (1999-2023)
NICOLA NUTTALL
Founder of strategic advice firm Coulson Partners, and brother of GBM patient Debbie Coulson (1959-2018)
ANDY COULSON
Experienced communications professional
SIMON MATTHEWS
Co-founder of Inside Stuarts Head, Marketing & Communications Specialist and wife of GBM patient Stuart Bathers (1981-2021)
ESTHER BATHERS
Advocate, and wife of GBM patient, Laurent Antoine Viteau (1970 - 2021). Laurent’s father also died from GBM.
UZMAH YUNIS
A comms and reputation management expert who is currently supporting her brother through his battle with GBM
FIONA THORNE
MD, Deputy Head of Neuro-Oncology at Columbia University, Chair of OurBrainBank Medical Advisors
Fabio Iwamoto
MD, Assistant Clinical Professor of Psychiatry, Columbia University-New York Presbyterian
Marina Benaur
MD, Harvey Cushing Prof of Neurosurgery, Harvard Medical School; Neurosurgeon-in-Chief and Chairman, Dept of Neurosurgery, Brigham and Women’s Hospital
E. Antonio Chiocca
MD, Neuro-Oncologist, Hartford HealthCare Cancer Institute
Alexis Demopoulos
MD, Dermatologist, Memorial Sloan Kettering
Mario Lacouture
MD, Neuro-Oncologist, Dana-Farber Cancer Institute; Assistant Professor of Neurology, Harvard Medical School
Lakshmi Nayak
MD, Neuro-surgeon, NYU Langone
Daniel Orringer
MD, Clinical Director, Center for Neuro-Oncology, Dana-Farber Cancer Institute; Prof of Medicine, Harvard Medical School
David A. Reardon
MD, MSN, Chief of Pain and Palliative Care Service, National Institutes of Health
Ann Berger
MEDICAL ADVISORS.
MD, Deputy Head of Neuro-Oncology at Columbia University, Chair of OurBrainBank Medical Advisors
Fabio Iwamoto
MD, Assistant Clinical Professor of Psychiatry, Columbia University-New York Presbyterian
Marina Benaur
MD, Harvey Cushing Prof of Neurosurgery, Harvard Medical School; Neurosurgeon-in-Chief and Chairman, Dept of Neurosurgery, Brigham and Women’s Hospital
E. Antonio Chiocca
MD, Neuro-Oncologist, Hartford HealthCare Cancer Institute
Alexis Demopoulos
MD, Dermatologist, Memorial Sloan Kettering
Mario Lacouture
MD, Neuro-Oncologist, Dana-Farber Cancer Institute; Assistant Professor of Neurology, Harvard Medical School
Lakshmi Nayak
MD, Neuro-surgeon, NYU Langone
Daniel Orringer
MD, Clinical Director, Center for Neuro-Oncology, Dana-Farber Cancer Institute; Prof of Medicine, Harvard Medical School
David A. Reardon
MD, MSN, Chief of Pain and Palliative Care Service, National Institutes of Health
Ann Berger
Founder
JESSICA MORRIS (1963-2021)
UK Board
JANA BENNETT (1955-2022)
US Board
GAIL FOSLER (1947-2023)
UK Board
LAURA NUTTALL (1999-2023)
IN MEMORY.
Founder
JESSICA MORRIS (1963-2021)
UK Board
JANA BENNETT (1955-2022)
US Board
GAIL FOSLER (1947-2023)
UK Board
LAURA NUTTALL (1999-2023)
