GBM Stories: Patrick Koske-McBride
Patrick writes with intelligence and dark humor about what’s like living with GBM.
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Website highlight: Newly Diagnosed with Glioblastoma?
You can feel alone and isolated, but help is at hand. Find out about the GBM Standard of Care, important questions to ask your doctor, tissue collection, and requesting a second opinion.
Adam Hayden, long-term GBM survivor
Long-term GBM survivor Adam Hayden’s hot take on living with a brain tumor.
Brain Breakthrough: RI researchers working to make progress against glioblastoma (TV news story)
WPRI reporter Ted Nesi covers new treatments for GBM and talks about his own personal experience losing a loved one to this terrible disease.
Benefit Event in Telluride
OurBrainBank board member and new Executive Director Kelli Duprey hosted a festive evening in Telluride, Colorado.
OurBrainBank Survey on Personalized Care
Are people diagnosed with glioblastoma offered genomic tumor testing?
New York Times Op-ed by Board Member Sundas Hashmi
My Brother Died of Brain Cancer. 20 Years Later, I Had It, Too.
I was told it didn’t run in families. Was it just chance?
2020 New York Times Op-ed by Jessica Morris and Jana Bennett
We Are Living With Brain Cancer. Here’s How Biden Could Help Us.
Like Beau Biden, we have glioblastoma. It doesn’t get the attention it should.
Our GBM Story: Margaret and Glenn
Margaret writes about her and her husband Glenn’s glioblastoma experience, including becoming activists for better treatment.
Brain Surgery Tips from the National Brain Tumor Society
The National Brain Tumor Society has good tips on what to expect when having brain surgery, including ideas for care partners. People who receive a glioblastoma diagnosis are usually completely shocked and not prepared, this information may help.
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