OurStoryBank: Erika talks about recurrence
Erika was thriving as a GBM survivor until it came back. She’s finding out that the options for recurrent GBM are few.
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Adam Hayden: writer, philosopher, husband, father and long-term glioblastoma survivor (1982-2025)
Remembering Adam Hayden, a giant in the glioblastoma community (1982-2025)
OurBrainBank: 2025 in photos & videos
In 2025 we met with people living with GBM and their care partners, traveled to conferences, and began to tell the world about our GBM Disparities Survey.
A Harvard Medical School student’s view: OBB at the Soc. for Neuro-Oncology conference
“It was incredibly energizing to see how OBB’s work is not only documenting problems but also driving conversations and initiatives that could improve access to care and quality of life for GBM patients across diverse communities.” Jacob Ellen writes about his experience with the SNO 2025 conference where OurBrainBank presented two posters and won an award.
Press release: 66% OF GLIOBLASTOMA PATIENTS NEVER OFFERED A CLINICAL TRIAL: Disparities in Glioblastoma Care Expose Systemic Failures
OurBrainBank 2025 press release about disparities in GBM treatment across the USA. Survey of 500+ patients and care partners show inequities — many Americans are not offered their best chance via a clinical trial, second opinion, and other factors.
Help us spread the word about disparities in GBM care in the USA — Demand More!
Our survey showed serious disparities in GBM care across the USA. Let’s tell the country and make change!
“I Have Terminal Cancer. This Is How I Broke the News to My Children”
OurBrainBank board member Sundas Hashmi writes in the Wall Street Journal about how she found a way to talk to her children about her brain cancer.
Glioblastoma Awareness Day: July 16, 2025
Glioblastoma Awareness Day: Help us spread the word about GBM.
OurBrainBank poster: GBM patient and care partner loneliness at ASCO 2026
OurBrainBank staff will be at the ASCO (American Society of Clinical Oncology) annual meeting in Chicago to present a poster about isolation and loneliness among GBM patients and care partners.
Good Morning America April 17: Trustee Sundas Hashmi talks with host Michael Strahan about brain cancer
Watch Good Morning America on Friday, April 17 to see OurBrainBank trustee Sundas Hashmi speak with host Michael Strahan about brain cancer
Help us raise funds and Demand More!
Help us raise funds for glioblastoma research — we collect data for tomorrow and help people today
Live chat April 1st: free navigation from the Brain Tumor Network
Navigators from the Brain Tumor Network can walk you through what to expect, how to ask about clinical trials, when to get a second opinion, and more
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