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Featured Research Study
Help Build the Next Generation of Glioblastoma Research
Beyond the Tumor. Understanding the Human Experience of Glioblastoma.
OurBrainBank is helping lead a digital phenotyping study that looks at life with glioblastoma between appointments, not just inside the clinic.
By combining passive smartphone data with patient-reported outcomes, the study explores social isolation, social support, mobility, and quality of life over time.
Support the study
Help reach the 100-participant goal
Advance patient-powered research
Enrollment Progress
Help Reach the 100-Participant Goal
DANO is enrolling 100 patients and care partners to help researchers better understand daily life with glioblastoma.
Enrollment Goal
100
Participants
Current Enrollment
0 / 100
Study Focus
Daily Life
With glioblastoma
Study Status
Recruiting
Active study
Enrollment Progress 0 of 100 participants enrolled 0%
Why This Study Matters
Research Should Reflect Life Between Appointments
Scans and treatments tell only part of the GBM story. DANO studies the daily realities patients and care partners navigate over time.
1
Patient-Powered Data
Participants share real-world information through smartphone tools and surveys.
2
Daily Patterns
The study tracks changes in mobility, connection, support, and quality of life.
3
Stronger Evidence
The goal is better supportive care shaped by lived experience.
What DANO Explores
Four Dimensions of Daily Life With Glioblastoma
DANO focuses on four parts of life that traditional research can miss.
Social Isolation
How loneliness and connection change over time.
Social Support
How support systems shape well-being.
Mobility
How daily movement shifts between appointments.
Quality of Life
How patients and care partners experience daily life with GBM.
Collaboration
Built Through Patient-Powered Collaboration
DANO brings together patient advocacy, clinical research, digital health, and data science to better understand the human experience of glioblastoma.
Patient advocacy
Clinical research
Digital health
Data science
Why Support Matters
Your Support Moves the Study Forward
Every gift helps move patient-powered GBM research forward.
Supports participant data collection.
Supports enrollment and coordination.
Accelerates patient-powered GBM research.
Help Build the Evidence
Advance Research Beyond the Tumor
DANO is designed to help researchers understand glioblastoma beyond the clinic, through the lived experience of patients and care partners.
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