GBM Patient & Carer support and informational videos
Connect with others also affected by glioblastoma—give and get support, information, and resources.
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Guide to sponsored patient support programs from pharma and device companies
Each year, Oncology Practice Management updates this comprehensive guide to sponsored patient support programs.
Running the Brighton Marathon to benefit OurBrainBank UK
Founder Jessica Morris’s family is running the Brighton marathon to raise funds for OurBrainBank!
OurBrainBank at SNO Annual Meeting 2024
This week, we presented preliminary results of our ambitious survey of 500+ people affected by GBM at the Society for Neuro-Oncology annual conference.
OurBrainBank benefit event in Connecticut Nov. 22, 2024
A good time was had by all at a festive evening of fun, live music, great food and drinks — all to benefit OurBrainBank. Let us know if you’d like to host a benefit event for us.
OurBrainBank at AONN+ Annual Meeting 2024
OurBrainBank is at the AONN+ (Academy of Oncology Nurse & Patient Navigators) annual conference in Las Vegas. Stop by our booth and poster to meet Executive Director Kelli Duprey and learn about our survey of disparities in GBM treatment across the USA.
MyTumorID — learn about vital tumor testing
Every brain tumor experience is unique, and every patient deserves a better chance at survival, a better chance at an adequate quality of life, and the best information available to make decisions for their treatment.
Demand More! Help us make the Glioblastoma Bill of Rights a reality
Our survey showed serious disparities in GBM care across the USA. Let’s tell the country and make change!
OurStoryBank: Erika talks about recurrence
Erika was thriving as a GBM survivor until it came back. She’s finding out that the options for recurrent GBM are few.
Adam Hayden: writer, philosopher, husband, father and long-term glioblastoma survivor (1982-2025)
Remembering Adam Hayden, a giant in the glioblastoma community (1982-2025)
OurBrainBank: 2025 in photos & videos
In 2025 we met with people living with GBM and their care partners, traveled to conferences, and began to tell the world about our GBM Disparities Survey.
A Harvard Medical School student’s view: OBB at the Soc. for Neuro-Oncology conference
“It was incredibly energizing to see how OBB’s work is not only documenting problems but also driving conversations and initiatives that could improve access to care and quality of life for GBM patients across diverse communities.” Jacob Ellen writes about his experience with the SNO 2025 conference where OurBrainBank presented two posters and won an award.
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