Adam Hayden: writer, philosopher, husband, father and long-term glioblastoma survivor (1982-2025)
Remembering Adam Hayden, a giant in the glioblastoma community (1982-2025)
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OurBrainBank: 2025 in photos & videos
In 2025 we met with people living with GBM and their care partners, traveled to conferences, and began to tell the world about our GBM Disparities Survey.
A Harvard Medical School student’s view: OBB at the Soc. for Neuro-Oncology conference
“It was incredibly energizing to see how OBB’s work is not only documenting problems but also driving conversations and initiatives that could improve access to care and quality of life for GBM patients across diverse communities.” Jacob Ellen writes about his experience with the SNO 2025 conference where OurBrainBank presented two posters and won an award.
Press release: 66% OF GLIOBLASTOMA PATIENTS NEVER OFFERED A CLINICAL TRIAL: Disparities in Glioblastoma Care Expose Systemic Failures
OurBrainBank 2025 press release about disparities in GBM treatment across the USA. Survey of 500+ patients and care partners show inequities — many Americans are not offered their best chance via a clinical trial, second opinion, and other factors.
Help us spread the word about disparities in GBM care in the USA — Demand More!
Our survey showed serious disparities in GBM care across the USA. Let’s tell the country and make change!
“I Have Terminal Cancer. This Is How I Broke the News to My Children”
OurBrainBank board member Sundas Hashmi writes in the Wall Street Journal about how she found a way to talk to her children about her brain cancer.
Glioblastoma Awareness Day: July 16, 2025
Glioblastoma Awareness Day: Help us spread the word about GBM.
Sponsor OurBrainBank Ex. Dir. as she hikes in Telluride!
Support OurBrainBank Executive Director Kelli Duprey as she hikes with her dog Wrigley to raise funds for OurBrainBank for Glioblastoma! Kelli will be hiking in the stunning mountains for Telluride, Colorado to raise funds and awareness about glioblastoma, the deadliest form for brain cancer.
Employer matching gifts?
Ask your employer if they match charitable gifts, many do. Here’s the info you’ll need.
Help us with a new survey on GBM treatment disparities for people in rural areas
We want to reach patients missing from the data, so we’re expanding our national disparities research to reach rural and underserved families often left out of the picture.
Live Zoom chat with Jason Binder: GBM & AI
Jason Binder is a father of five and healthcare entrepreneur whose wife, Tracy, died of glioblastoma in 2025. During her illness, he built an AI tool…
OurStoryBank: Erika talks about recurrence
Erika was thriving as a GBM survivor until it came back. She’s finding out that the options for recurrent GBM are few.
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