Alex Bennett-Clemmow’s Story
Alex Bennett-Clemmow was a carer for her mother Jana Bennett, who was diagnosed with GBM in 2019.
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OurStoryBank — showcases the diverse stories of our community.
Whether you want to share your own personal experience living with GBM, caring for someone, or if you lost a loved to this deadly disease, we are a listening ear, and a megaphone to our supportive community.
Glioblastoma is a terrible disease and affects each person differently. Sharing your experience with diagnosis, treatments, logistics, and emotions may help others facing the same journey. We will package your submission into posts for our social media. To join the project, please use this form to send us a photo and a short (200 words) text with the name and life dates (as appropriate).
Here is an example with our founder, Jessica Morris.
Yaron Butterfield’s Story
Yaron was working as a genomics researcher, tasked with sequencing the SARS genome in April 2003.
Maryam Hussain’s Story
Liaquat, Maryam’s father, was diagnosed with GBM in November 2020 and died six months after diagnosis.
Jessica Morris, the founder of OurBrainBank, lived five years with GBM
Jessica led a life full of fire and passion, most notably in her work as founder and chair of OurBrainBank
Jana’s Story: My D-Day: GBM Diagnosis
When I went into the ER, my wonderful family and I had no idea that what I had been experiencing was caused by a tumour in my brain.
Karen & Mike’s Story
In January of 2018, Mike had a grand mal seizure and was diagnosed with GBM, he was 58
Lynn Oxenberg – GBM survivor
Lynn Oxenberg, a 69-year-old-wife, mother of two and grandmother of four.
Our GBM Story: Margaret and Glenn
Margaret writes about her and her husband Glenn’s glioblastoma experience, including becoming activists for better treatment.
Australian professor Richard Scolyer documents his glioblastoma journey
Prof. Richard Scolyer is an Australian pathologist who’s bravely sharing his GBM journey
GBM Stories: Patrick Koske-McBride
Patrick writes with intelligence and dark humor about what’s like living with GBM.
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