Kyle Humphries – GBM survivor
Kyle Humphries, who lives in New York City, is a GBM survivor who has been through surgery, a clinical trial and integrative medicines.
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OurStoryBank — showcases the diverse stories of our community.
Whether you want to share your own personal experience living with GBM, caring for someone, or if you lost a loved to this deadly disease, we are a listening ear, and a megaphone to our supportive community.
Glioblastoma is a terrible disease and affects each person differently. Sharing your experience with diagnosis, treatments, logistics, and emotions may help others facing the same journey. We will package your submission into posts for our social media. To join the project, please use this form to send us a photo and a short (200 words) text with the name and life dates (as appropriate).
Here is an example with our founder, Jessica Morris.
Debbie Coulson’s story
Debbie (Debs) Coulson, 58, from Colchester was diagnosed with glioblastoma in 2017.
Alex Bennett-Clemmow’s Story
Alex Bennett-Clemmow was a carer for her mother Jana Bennett, who was diagnosed with GBM in 2019.
Yaron Butterfield’s Story
Yaron was working as a genomics researcher, tasked with sequencing the SARS genome in April 2003.
Maryam Hussain’s Story
Liaquat, Maryam’s father, was diagnosed with GBM in November 2020 and died six months after diagnosis.
Jessica Morris, the founder of OurBrainBank, lived five years with GBM
Jessica led a life full of fire and passion, most notably in her work as founder and chair of OurBrainBank
Jana’s Story: My D-Day: GBM Diagnosis
When I went into the ER, my wonderful family and I had no idea that what I had been experiencing was caused by a tumour in my brain.
New York Times Op-ed by Board Member Sundas Hashmi
My Brother Died of Brain Cancer. 20 Years Later, I Had It, Too.
I was told it didn’t run in families. Was it just chance?
2020 New York Times Op-ed by Jessica Morris and Jana Bennett
We Are Living With Brain Cancer. Here’s How Biden Could Help Us.
Like Beau Biden, we have glioblastoma. It doesn’t get the attention it should.
Our GBM Story: Margaret and Glenn
Margaret writes about her and her husband Glenn’s glioblastoma experience, including becoming activists for better treatment.
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