Resources for glioblastoma care partners
Receiving a GBM diagnosis can be very lonely and frightening. But you are not alone.
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New York Times Op-ed by Board Member Sundas Hashmi
My Brother Died of Brain Cancer. 20 Years Later, I Had It, Too.
I was told it didn’t run in families. Was it just chance?
2020 New York Times Op-ed by Jessica Morris and Jana Bennett
We Are Living With Brain Cancer. Here’s How Biden Could Help Us.
Like Beau Biden, we have glioblastoma. It doesn’t get the attention it should.
Our GBM Story: Margaret and Glenn
Margaret writes about her and her husband Glenn’s glioblastoma experience, including becoming activists for better treatment.
Brain Surgery Tips from the National Brain Tumor Society
The National Brain Tumor Society has good tips on what to expect when having brain surgery, including ideas for care partners. People who receive a glioblastoma diagnosis are usually completely shocked and not prepared, this information may help.
Australian professor Richard Scolyer documents his glioblastoma journey
Prof. Richard Scolyer is an Australian pathologist who’s bravely sharing his GBM journey
Demand More! Help us make the Glioblastoma Bill of Rights a reality
Our survey showed serious disparities in GBM care across the USA. Let’s tell the country and make change!
Op-ed by Board Member Sundas Hashmi
There’s a ticking time bomb in my head. I’m learning to live with it.
Like most people in treatment for brain tumors in the United States, I’ve had to adapt to a mind that feels very different from the one I once knew.
Two substantial health reports are released today in the UK.
Two substantial health reports are out today in the UK.
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