If you have a glioblastoma diagnosis, a clinical trial could be your best hope.
First, talk to your medical team to find out if you’re a good candidate. Some doctors may be resistant, so don’t be afraid to get a second opinion, especially if your hospital is not a major center for brain cancer.
A good next step is to contact one of the non-profits that offer navigation services, they can walk you through the process.
Support, information, virtual tumor boards, second opinions
Brain Tumor Network
Phone or email consultation includes clinical trial matching. “BTN’s services are free for patients and healthcare providers; the information you receive from BTN will be personalized to tumor type, medical history, and personal needs.” USA
National Brain Tumor Society
“The NBTS Clinical Trial Finder is intended to help raise awareness and increase participation in clinical trials to facilitate brain tumor research and accelerate the development of new drugs and treatments for patients.” Other resources include financial assistance, support, help with transportation and legal issues, and more. USA
American Brain Tumor Association
“The ABTA is a steadfast advocate on behalf of the brain tumor community in the United States, and we are here to help patients, caregivers, and their loved ones as they navigate the brain tumor journey.” Guide to treatment centers. USA
Al Musella Foundation/Cancer Commons
“Xcelsior: a patient centric platform trial for precision oncology” USA
Cancer Commons
“Cancer Commons provides compassionate support as we identify and help you access the best diagnostic and treatment options.” USA
End Brain Cancer
“We provide educational materials about: what to demand from a neuro-surgeon, pathologist, radiologist and neuro-oncologist/oncologist, advanced treatments, clinical trials, DNA sequencing, genomic profiling, MGMT testing and protein testing” App to help navigate your GBM journey. USA
NCI-Connect
The National Cancer Institute offers services including, support, referrals, help finding a clinical trial, and free consultations (second opinion) at Johns Hopkins Hospital. USA
brainstrust
“We provide personalised support and build resources that help people with a brain tumour and their loved ones.” UK
The Brain Tumour Charity
“The Brain Tumour Charity is the world’s leading brain tumour charity and the largest dedicated funder of research into brain tumours globally.” UK
Brain Tumour Research
Information including clinical trials and opportunities to participate in research registries including tissue and brain donation. UK
Clinical Trials: information and matching services
Leal Health
“Patient-first digital health company with a mission to democratize access to advanced cancer treatment through clinical trials.” USA
EmergingMed
“We provide services for patients that raise awareness and facilitate access to clinical trials.”
Belong.Life
“Clinical trials matching technologies can find any trial on earth that might be relevant to your condition.” Offers peer-to-peer support and more via their cancer app. International
ClinicalTrials.gov
Search engine with trials around the world (for everyone, not just US citizens). Make sure trials are “recruiting” and “interventional” (although “observational” GBM trials help research).
LATEST NEWS.
OurBrainBank presents GBM patients’ and care partners’ experiences
OurBrainBank’s glioblastoma survey found younger respondents (under 50) had a longer wait as did urban residents.
We’re presenting these findings and others at the ASCO Quality Care Symposium in Boston, October 2026.
GBM Voices chat: isolation and connection measured: LIFT — Life Insights From Technology
Lakshmi Nayak, MD, of Dana-Farber Cancer Institute. Dr. Nayak explains LIFT — Life Insights From Technology — and how researchers are exploring daily-life patterns and social support for people with GBM and their care partners.
GBM Voices chat: Integrative Oncology (video)
What does integrative oncology actually mean for someone living with a brain tumor?
FDA approves Pixclara, the first FDA-approved FET-PET imaging drug for glioma
The FDA has approved Pixclara®, the first FDA-approved FET-PET imaging drug for glioma. Here’s what the approval may mean for patients and care partners.
“Here’s what no one told us” — OurBrainBank staffer on a loved one’s GBM diagnosis
My mother-in-law Karla told me she had a brain tumor before she told my wife Michelle. Karla and Michelle were inseparable. Karla had Michelle at just 18, so in many ways, they grew up together. Michelle shared everything with her mom because Karla was her best friend…
LATEST NEWS.
OurBrainBank presents GBM patients’ and care partners’ experiences
OurBrainBank’s glioblastoma survey found younger respondents (under 50) had a longer wait as did urban residents.
We’re presenting these findings and others at the ASCO Quality Care Symposium in Boston, October 2026.
GBM Voices chat: isolation and connection measured: LIFT — Life Insights From Technology
Lakshmi Nayak, MD, of Dana-Farber Cancer Institute. Dr. Nayak explains LIFT — Life Insights From Technology — and how researchers are exploring daily-life patterns and social support for people with GBM and their care partners.
GBM Voices chat: Integrative Oncology (video)
What does integrative oncology actually mean for someone living with a brain tumor?
FDA approves Pixclara, the first FDA-approved FET-PET imaging drug for glioma
The FDA has approved Pixclara®, the first FDA-approved FET-PET imaging drug for glioma. Here’s what the approval may mean for patients and care partners.
“Here’s what no one told us” — OurBrainBank staffer on a loved one’s GBM diagnosis
My mother-in-law Karla told me she had a brain tumor before she told my wife Michelle. Karla and Michelle were inseparable. Karla had Michelle at just 18, so in many ways, they grew up together. Michelle shared everything with her mom because Karla was her best friend…