Glioblastoma (GBM) is an aggressive, deadly brain tumor that currently has no cure. People living with GBM deserve quality care and the ability to make informed decisions.
In June 2017 OurBrainBank’s founder Jessica Morris attended the New York launch of the Biden Cancer Initiative, the philanthropic scheme set up by Joe and Jill Biden in honour of Joe’s son Beau who had died of GBM. She talked about OBB’s mission to move GBM from terminal to treatable, powered by patients. “We need a sense of urgency!” she told him.
A PATIENT-CENTERED CALL TO ACTION.
Glioblastoma (GBM) is an aggressive, deadly brain tumor that currently has no cure. People living with GBM deserve quality care and the ability to make informed decisions.
In June 2017 OurBrainBank’s founder Jessica Morris attended the New York launch of the Biden Cancer Initiative, the philanthropic scheme set up by Joe and Jill Biden in honour of Joe’s son Beau who had died of GBM. She talked about OBB’s mission to move GBM from terminal to treatable, powered by patients. “We need a sense of urgency!” she told him.
Now is the time for a GBM Bill of Rights. Developed by patients ourselves, alongside our families and advocates, this is the roadmap to patient power and a brighter future.
A PATIENT-CENTERED CALL TO ACTION
THE GBM BILL OF RIGHTS.
PATIENT-CENTERED CARE
An equal and collaborative patient/doctor relationship with personalized treatment that includes genomic and genetic testing, and tumor analysis.
A SECOND OPINION
A second opinion offered at appropriate stages of diagnosis and treatments.
CLARITY OF INFORMATION
Up-to-date, accurate information about all potential treatment options; transparency about treatment centers and their outcomes.
SPECIALIST CARE
Access to a coordinated medical team — brain tumor specialist, neuro-surgeon, neuro-oncologist, radiation oncologist, and others.
- Tab
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- Patient-centered care
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PATIENT-CENTERED CARE
An equal and collaborative patient/doctor relationship with personalized treatment that includes genomic and genetic testing, and tumor analysis.
- A second opinion
-
A SECOND OPINION
A second opinion offered at appropriate stages of diagnosis and treatments.
- Clarity of information
-
CLARITY OF INFORMATION
Up-to-date, accurate information about all potential treatment options; transparency about treatment centers and their outcomes.
- Specialist care
-
SPECIALIST CARE
Access to a coordinated medical team — brain tumor specialist, neuro-surgeon, neuro-oncologist, radiation oncologist, and others.
ACCESS TO TRIALS AND EXPERIMENTAL TREATMENTS
Up-to-date, accurate information about new drugs, treatments, and clinical trials, including international options.
PSYCHOLOGICAL SUPPORT
Comprehensive psychological help for us and our carers.
MONEY-BLIND TREATMENT
Best treatment regardless of personal financial situation.
FAST-TRACKED TREATMENTS
Fast-tracked MRI results, treatments, and ER visits.
- Tab
-
-
Access to trials and
experimental
treatments -
ACCESS TO TRIALS AND EXPERIMENTAL TREATMENTS
Up-to-date, accurate information about new drugs, treatments, and clinical trials, including international options.
-
Psychological
support -
PSYCHOLOGICAL SUPPORT
Comprehensive psychological help for us and our carers.
-
Money-blind
treatment -
MONEY-BLIND TREATMENT
Best treatment regardless of personal financial situation.
-
Fast-tracked
treatments -
FAST-TRACKED TREATMENTS
Fast-tracked MRI results, treatments, and ER visits.
PATIENT-OWNED DATA
Ownership of and access to our health data, and the ability to transport and donate our data and tissue for research.
BEST END-OF-LIFE CARE
Access to pain management, palliative care, and hospice.
BRAIN DONATION
Information provided to us and our families about no-cost brain donation for scientific research.
- Tab
-
- Patient-owned data
-
PATIENT-OWNED DATA
Ownership of and access to our health data, and the ability to transport and donate our data and tissue for research.
- Best end-of-life care
-
BEST END-OF-LIFE CARE
Access to pain management, palliative care, and hospice.
- Brain donation
-
BRAIN DONATION
Information provided to us and our families about no-cost brain donation for scientific research.
PATIENT-CENTERED CARE
An equal and collaborative patient/doctor relationship with personalized treatment that includes genomic and genetic testing, and tumor analysis.
A SECOND OPINION
A second opinion offered at appropriate stages of diagnosis and treatments.
- Tab
-
- Patient-centered care
-
PATIENT-CENTERED CARE
An equal and collaborative patient/doctor relationship with personalized treatment that includes genomic and genetic testing, and tumor analysis.
- A second opinion
-
A SECOND OPINION
A second opinion offered at appropriate stages of diagnosis and treatments.
CLARITY OF INFORMATION
Up-to-date, accurate information about all potential treatment options; transparency about treatment centers and their outcomes.
SPECIALIST CARE
Access to a coordinated medical team — brain tumor specialist, neuro-surgeon, neuro-oncologist, radiation oncologist, and others.
- Tab
-
- Clarity of information
-
CLARITY OF INFORMATION
Up-to-date, accurate information about all potential treatment options; transparency about treatment centers and their outcomes.
- Specialist care
-
SPECIALIST CARE
Access to a coordinated medical team — brain tumor specialist, neuro-surgeon, neuro-oncologist, radiation oncologist, and others.
ACCESS TO TRIALS AND EXPERIMENTAL TREATMENTS
Up-to-date, accurate information about new drugs, treatments, and clinical trials, including international options.
PSYCHOLOGICAL SUPPORT
Comprehensive psychological help for us and our carers.
- Tab
-
-
Access to trials and
experimental
treatments -
ACCESS TO TRIALS AND EXPERIMENTAL TREATMENTS
Up-to-date, accurate information about new drugs, treatments, and clinical trials, including international options.
-
Psychological
support -
PSYCHOLOGICAL SUPPORT
Comprehensive psychological help for us and our carers.
MONEY-BLIND TREATMENT
Best treatment regardless of personal financial situation.
FAST-TRACKED TREATMENTS
Fast-tracked MRI results, treatments, and ER visits.
- Tab
-
-
Money-blind
treatment -
MONEY-BLIND TREATMENT
Best treatment regardless of personal financial situation.
-
Fast-tracked
treatments -
FAST-TRACKED TREATMENTS
Fast-tracked MRI results, treatments, and ER visits.
PATIENT-OWNED DATA
Ownership of and access to our health data, and the ability to transport and donate our data and tissue for research.
BEST END-OF-LIFE CARE
Access to pain management, palliative care, and hospice.
- Tab
-
- Patient-owned data
-
PATIENT-OWNED DATA
Ownership of and access to our health data, and the ability to transport and donate our data and tissue for research.
- Best end-of-life care
-
BEST END-OF-LIFE CARE
Access to pain management, palliative care, and hospice.
BRAIN DONATION
Information provided to us and our families about no-cost brain donation for scientific research.
- Tab
-
- Brain donation
-
BRAIN DONATION
Information provided to us and our families about no-cost brain donation for scientific research.
PATIENT-CENTERED CARE
An equal and collaborative patient/doctor relationship with personalized treatment that includes genomic and genetic testing, and tumor analysis.
- Tab
-
- Patient-centered care
-
PATIENT-CENTERED CARE
An equal and collaborative patient/doctor relationship with personalized treatment that includes genomic and genetic testing, and tumor analysis.
A SECOND OPINION
A second opinion offered at appropriate stages of diagnosis and treatments.
- Tab
-
- A second opinion
-
A SECOND OPINION
A second opinion offered at appropriate stages of diagnosis and treatments.
CLARITY OF INFORMATION
Up-to-date, accurate information about all potential treatment options; transparency about treatment centers and their outcomes.
- Tab
-
- Clarity of information
-
CLARITY OF INFORMATION
Up-to-date, accurate information about all potential treatment options; transparency about treatment centers and their outcomes.
SPECIALIST CARE
Access to a coordinated medical team — brain tumor specialist, neuro-surgeon, neuro-oncologist, radiation oncologist, and others.
- Tab
-
- Specialist care
-
SPECIALIST CARE
Access to a coordinated medical team — brain tumor specialist, neuro-surgeon, neuro-oncologist, radiation oncologist, and others.
ACCESS TO TRIALS AND EXPERIMENTAL TREATMENTS
Up-to-date, accurate information about new drugs, treatments, and clinical trials, including international options.
- Tab
-
-
Access to trials and
experimental
treatments -
ACCESS TO TRIALS AND EXPERIMENTAL TREATMENTS
Up-to-date, accurate information about new drugs, treatments, and clinical trials, including international options.
PSYCHOLOGICAL SUPPORT
Comprehensive psychological help for us and our carers.
- Tab
-
-
Psychological
support -
PSYCHOLOGICAL SUPPORT
Comprehensive psychological help for us and our carers.
MONEY-BLIND TREATMENT
Best treatment regardless of personal financial situation.
- Tab
-
-
Money-blind
treatment -
MONEY-BLIND TREATMENT
Best treatment regardless of personal financial situation.
FAST-TRACKED TREATMENTS
Fast-tracked MRI results, treatments, and ER visits.
- Tab
-
-
Fast-tracked
treatments -
FAST-TRACKED TREATMENTS
Fast-tracked MRI results, treatments, and ER visits.
PATIENT-OWNED DATA
Ownership of and access to our health data, and the ability to transport and donate our data and tissue for research.
- Tab
-
- Patient-owned data
-
PATIENT-OWNED DATA
Ownership of and access to our health data, and the ability to transport and donate our data and tissue for research.
BEST END-OF-LIFE CARE
Access to pain management, palliative care, and hospice.
- Tab
-
- Best end-of-life care
-
BEST END-OF-LIFE CARE
Access to pain management, palliative care, and hospice.
BRAIN DONATION
Information provided to us and our families about no-cost brain donation for scientific research.
- Tab
-
- Brain donation
-
BRAIN DONATION
Information provided to us and our families about no-cost brain donation for scientific research.
Please share the GBM Bill of Rights. Here’s a printable black & white PDF (take it with you to your next doctor visit), printable color version, and press release.
THANK YOU TO OUR NONPROFIT PARTNERS BEHIND THE GBM BILL OF RIGHTS
Please note the GBM Bill of Rights does not necessarily reflect the views of our advocacy partners.
THANK YOU TO OUR NONPROFIT PARTNERS BEHIND THE GBM BILL OF RIGHTS
Please note the GBM Bill of Rights does not necessarily reflect the views of our advocacy partners.
