Beyond the Tumor
OurBrainBank advanced to the full-proposal stage for a $200,000 quality-of-life research grant. When that funding route closed, the need remained.
Now we are asking the community to help launch a national virtual study of 50 adults living with glioblastoma and 50 care partners.
The Community Study
Participants would answer brief questions and securely share smartphone patterns about mobility, activity, and connection. No message content, call audio, or voice recordings.
Adults
Adults
Virtual
Preparing to launch
A Determination That Continues
Jessica founded OurBrainBank because patients should help shape research and decisions about their care.
Her determination lives on in every patient and care partner who shares an experience and asks the next question.
Include experiences beyond major academic centers.
Study changes that happen between appointments.
Turn lived experience into research that can help families.
What DANO Explores
DANO focuses on four parts of life that traditional research can miss.
How loneliness and connection change over time.
How support systems shape well-being.
How daily movement shifts between appointments.
How patients and care partners experience daily life with GBM.
How the Research Fits Together
OurBrainBank is a research collaborator with Mass General Brigham and Dana-Farber on the existing DANO-GBM study.
Our planned national community study would expand this research beyond academic centers. Ultimately, we hope to explore how findings compare across both studies.
Why We Need Your Help
When the $200,000 grant route closed, OurBrainBank turned to the community.
Your gift helps us prepare and launch the national cohort, support participants, collect secure data, analyze findings, and share what we learn.
Prepare the study and reach participants.
Help patients and care partners take part.
Collect and analyze secure research data.
Turn findings into information people can use.
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Carry the Work Forward
Give if you can. Share the campaign. Help us reach the next family.