OurStoryBank: Share your glioblastoma story
OurStoryBank: Jessica Morris’s Story
Understanding the condition and connecting with others with the illness can help you feel empowered on your GBM journey.
In 2024, we’re collecting data on disparities in how people with GBM are treated in the USA, where do you live? Did you get high-quality treatment? Take our survey online or by phone at 909-274-9486.
Doctors will often say ‘Don’t Google GBM’ because the information out there can be disheartening.
GBM is one of the most aggressive cancers and one of the hardest to treat, and as a result survival rates are low, with just a 5% five-year survival rate. Existing treatments are not a cure, but a way to extend life. The current standard of care is unlikely to remove the entire tumor. It might no longer be visible following treatment, yet tiny pieces can remain and for the majority of people the tumor returns. On your GBM journey you should equip yourself with as much knowledge as possible to ensure you are aware of the options available beyond standard treatments.
STORIES.
Op-ed by Board Member Sundas Hashmi
There’s a ticking time bomb in my head. I’m learning to live with it.
Like most people in treatment for brain tumors in the United States, I’ve had to adapt to a mind that feels very different from the one I once knew.
“The Stars Will Still Be There: What my daughter taught me about love, life and loss” — memoir by OurBrainBank board member Nicola Nuttall
Nicola Nuttall writes movingly about her daughter Laura who lived an incredible vivid life even after being diagnosed with glioblastoma.
OurStoryBank: Georgie Maynard, living with glioblastoma
Over the last year we’ve entered this unexpected brain cancer world after discovering a glioblastoma (GBM) brain cancer tumour, grade 4, and consequently limited life expectancy.
New York Times Op-ed by Board Member Sundas Hashmi
My Brother Died of Brain Cancer. 20 Years Later, I Had It, Too.
I was told it didn’t run in families. Was it just chance?
STORIES.
Op-ed by Board Member Sundas Hashmi
There’s a ticking time bomb in my head. I’m learning to live with it.
Like most people in treatment for brain tumors in the United States, I’ve had to adapt to a mind that feels very different from the one I once knew.
“The Stars Will Still Be There: What my daughter taught me about love, life and loss” — memoir by OurBrainBank board member Nicola Nuttall
Nicola Nuttall writes movingly about her daughter Laura who lived an incredible vivid life even after being diagnosed with glioblastoma.
OurStoryBank: Georgie Maynard, living with glioblastoma
Over the last year we’ve entered this unexpected brain cancer world after discovering a glioblastoma (GBM) brain cancer tumour, grade 4, and consequently limited life expectancy.
New York Times Op-ed by Board Member Sundas Hashmi
My Brother Died of Brain Cancer. 20 Years Later, I Had It, Too.
I was told it didn’t run in families. Was it just chance?
