LATEST NEWS
OurBrainBank Data Collection.
NEWS
OurBrainBank Data Collection.
Academic Journal Articles, Oncology Conference Posters and Papers, and Publications
“Unmet Needs: What People Living with Glioblastoma Lack Today, Including Access to Critical Genomic Tumor Testing” Poster presented at SNO Vancouver, 2023
“Access to critical genomic tumor testing for glioblastoma (GBM) patients” Poster presented at SNO/ASCO San Francisco, 2023
“Pilot study of smartphone-based health outcome tracking (OurBrainBank) for glioblastoma patients” Journal of Neuro-Oncology Practice, July 2021
AONN+ conference: OurBrainBank won the Outstanding Poster Award in the category of “Patient Advocacy and Patient Awareness” from the Academy of Oncology Nurse & Patient Navigators, November, 2020
“Study of a smartphone-based symptom assessment (OurBrainBank) for subjects with glioblastomas” American Society of Clinical Oncology 2019 annual meeting (ASCO19).
“Pilot of a smartphone-based symptom assessment (OurBrainBank) for subjects with glioblastoma” (Abstract) Society for Neuro-Oncology (SNO 2018)
“The Potential of Patient Power: Progress Report,” OurBrainBank, 2019
Surveys
2024: Survey on Disparities in GBM Treatment in the USA
2022-23: Personalized Care Survey
2019: Patient Action Charter Survey (basis of our GBM Bill of Rights)
2019: Clinical Trials Survey
In 2024, we embarked on a large national research project to identify health disparities in identifying and treating GBM across the United States. We’ll use this data to demand better and equal treatment for every patient.
LATEST NEWS.
Op-ed by Board Member Sundas Hashmi
There’s a ticking time bomb in my head. I’m learning to live with it.
Like most people in treatment for brain tumors in the United States, I’ve had to adapt to a mind that feels very different from the one I once knew.
Two substantial health reports are released today in the UK.
Two substantial health reports are out today in the UK.
Demand More! Help us make the Glioblastoma Bill of Rights a reality
Our survey showed serious disparities in GBM care across the USA. Let’s tell the country and make change!
OBB working with a group of brain tumour charities and a non-profit to ensure that patients have timely access to innovative treatments
We have been collaborating in the UK with a group of brain tumour charities and a non-profit organisation to ensure that patients have timely access to innovative treatments.
“The Stars Will Still Be There: What my daughter taught me about love, life and loss” — memoir by OurBrainBank board member Nicola Nuttall
Nicola Nuttall writes movingly about her daughter Laura who lived an incredible vivid life even after being diagnosed with glioblastoma.
LATEST NEWS.
Op-ed by Board Member Sundas Hashmi
There’s a ticking time bomb in my head. I’m learning to live with it.
Like most people in treatment for brain tumors in the United States, I’ve had to adapt to a mind that feels very different from the one I once knew.
Two substantial health reports are released today in the UK.
Two substantial health reports are out today in the UK.
Demand More! Help us make the Glioblastoma Bill of Rights a reality
Our survey showed serious disparities in GBM care across the USA. Let’s tell the country and make change!
OBB working with a group of brain tumour charities and a non-profit to ensure that patients have timely access to innovative treatments
We have been collaborating in the UK with a group of brain tumour charities and a non-profit organisation to ensure that patients have timely access to innovative treatments.
“The Stars Will Still Be There: What my daughter taught me about love, life and loss” — memoir by OurBrainBank board member Nicola Nuttall
Nicola Nuttall writes movingly about her daughter Laura who lived an incredible vivid life even after being diagnosed with glioblastoma.