Patient-led advocacy
Glioblastoma Bill of Rights
Eight practical rights to help patients and care partners ask questions, understand options, and advocate for high-quality care.
Created by patients. Strengthened by evidence.
What patients told us shaped the revision
OurBrainBank created the original Bill of Rights, then surveyed 525 patients and care partners nationwide to learn where care was falling short. Those findings informed this May 2026 revision.
66%were never offered a clinical trial
54%had no second-opinion discussion
69%received no information about tissue storage
34%were not informed that tumor testing occurred
At appointments
- Mark questions before the visit.
- Request copies of imaging, pathology, testing results, and treatment summaries.
- Bring a care partner or trusted advocate to take notes.
Get Involved
Tell us how you’d like to support OurBrainBank, share your expertise, or become part of our community.