LATEST NEWS
Adam Hayden on his back-up plan.
NEWS
A hot take on living with GBM for a long time.
Adam Hayden, a long-time friend of OurBrainBank, writes with honesty and dark humor (but not too dark) about what it’s like living with glioblastoma way past the usual prognosis.
“The a brain tumor hot take that nobody asked for,” I tapped out on my phone one day recently. I’m not a fan of appealing to dictionaries to frame up an essay, but Google returned a decent one for hot take:
A piece of commentary, typically produced quickly in response to a recent event, whose primary purpose is to attract attention.
I guess that gets it pretty right. I continued tapping, “The general brain tumor emotional landscape splits into extremes: fearful, uncertain, and grieving or overcompensatingly energetic and ready to fight.”
LATEST NEWS.
Op-ed by Board Member Sundas Hashmi
There’s a ticking time bomb in my head. I’m learning to live with it.
Like most people in treatment for brain tumors in the United States, I’ve had to adapt to a mind that feels very different from the one I once knew.
Two substantial health reports are released today in the UK.
Two substantial health reports are out today in the UK.
Demand More! Help us make the Glioblastoma Bill of Rights a reality
Our survey showed serious disparities in GBM care across the USA. Let’s tell the country and make change!
OBB working with a group of brain tumour charities and a non-profit to ensure that patients have timely access to innovative treatments
We have been collaborating in the UK with a group of brain tumour charities and a non-profit organisation to ensure that patients have timely access to innovative treatments.
“The Stars Will Still Be There: What my daughter taught me about love, life and loss” — memoir by OurBrainBank board member Nicola Nuttall
Nicola Nuttall writes movingly about her daughter Laura who lived an incredible vivid life even after being diagnosed with glioblastoma.
LATEST NEWS.
Op-ed by Board Member Sundas Hashmi
There’s a ticking time bomb in my head. I’m learning to live with it.
Like most people in treatment for brain tumors in the United States, I’ve had to adapt to a mind that feels very different from the one I once knew.
Two substantial health reports are released today in the UK.
Two substantial health reports are out today in the UK.
Demand More! Help us make the Glioblastoma Bill of Rights a reality
Our survey showed serious disparities in GBM care across the USA. Let’s tell the country and make change!
OBB working with a group of brain tumour charities and a non-profit to ensure that patients have timely access to innovative treatments
We have been collaborating in the UK with a group of brain tumour charities and a non-profit organisation to ensure that patients have timely access to innovative treatments.
“The Stars Will Still Be There: What my daughter taught me about love, life and loss” — memoir by OurBrainBank board member Nicola Nuttall
Nicola Nuttall writes movingly about her daughter Laura who lived an incredible vivid life even after being diagnosed with glioblastoma.