GBM Voices.

• Glioblastoma Bill of Rights — mentioned in the call; principles for individualized care and informed decisions.

Related OurBrainBank information

• Genomic testing — background on a topic discussed during the Q&A.
• Pixclara and FET-PET imaging — OurBrainBank’s explainer on an imaging topic raised in the call.

The speaker’s individual treatment and supplement answers remain in her original downloadable document above. Inclusion does not imply OurBrainBank endorsement.

• LIFT-GBM — Life Insights From Technology — the smartphone-based digital phenotyping study discussed by Dr. Nayak.
• ABTA National Conference — conference information, including the 2026 session on the promise and pitfalls of AI mentioned by an attendee.

Related support

• Dana-Farber Adult Social Work Program — information about support for patients and loved ones, related to the discussion of social workers and connection.

This was a conversational session; no slides were presented.

From the session resource guide: choose a healthcare decision-maker, talk about your values and wishes, share completed forms with your care team and loved ones, and revisit your plans as your needs change.

• The Conversation Project — free guides for starting conversations and choosing a healthcare proxy.
• CaringInfo — state-specific advance directive forms and instructions.
• National POLST — information about POLST/MOLST and serious illness planning.
• Five Wishes — a guided advance directive and conversation tool.
• Get Palliative Care — information about palliative care and finding support.
• OurBrainBank: Where Do I Go for Help? — GBM support, navigation, care partner and treatment resources.
• ABTA: Managing Scanxiety — a recorded webinar about coping with scan-related anxiety.

Advance directive, DNR, MOLST and POLST requirements vary by state. Your medical team can help identify the forms that apply where you live.

Resources shared in Dr. Sharma’s session and follow-up guide.

• Get Palliative Care — palliative care, symptom management and supportive care information.
• Brain Tumor Network — free one-to-one navigation, treatment information, clinical trial searches and support resources.
• American Brain Tumor Association — education, webinars and peer support.
• National Brain Tumor Society — resources, education, advocacy and community support.
• Musella Foundation — brain tumor education, treatment information, clinical trial resources and patient support.
• UCSF caregiver resources — caregiver-focused support and education.
• OurBrainBank: Where Do I Go for Help? — support, navigation and financial-assistance resources.
• Optune Buddy Program — product-specific peer support for people using Optune and their care partners.
• CaringBridge — share updates and coordinate support.
• Ember Health — a resource shared in the session guide.
• Palliative Care: YOU Are a BRIDGE — an introductory video about palliative care.
• Brain Cancer Care Partners — a discussion of caregiver experiences and support.
• Neuro-Oncology Podcast — browse available episodes.

Books shared in the resource guide

• The Beginner’s Guide to the End
• You Can’t Do It Alone
• Four Things That Matter Most
• Being Mortal
• The Art of Dying Well
• Love in the Time of Chronic Illness
• Stand By Me

These resources were shared for education; inclusion does not imply OurBrainBank’s endorsement of a product, service or treatment.