Glioblastoma is an aggressive, unforgiving illness. Join us in demanding a new approach.
Glioblastoma is too often put in the ‘too difficult’ box. Survival rates have remained virtually the same for decades. We need more research, more urgency and more attention NOW.
13,000
PEOPLE ARE DIAGNOSED WITH GLIOBLASTOMA IN THE US EACH YEAR
5%
FIVE-YEAR SURVIVAL RATE
JUST
5%
OF RESEARCH FUNDING APPLICATIONS SUCCEED
13,000
PEOPLE ARE DIAGNOSED WITH GLIOBLASTOMA IN THE US EACH YEAR
The GBM Bill of Rights was developed by patients and ourselves, alongside our families and advocates.
GENOMIC TESTING.
Scientific advances like genomic testing and personalised medicine offer a way forward for people with GBM.
GBM DATA PROJECTS.
People with GBM are often left out of discussions about their own health journey. Our mission is to change this.
GBM BILL OF RIGHTS.
The GBM Bill of Rights was developed by patients and ourselves, alongside our families and advocates.
GENOMIC TESTING.
Scientific advances like genomic testing and personalised medicine offer a way forward for people with GBM.
MY DATA.
People with GBM are often left out of discussions about their own health journey. Our mission is to change this.
ADVOCATING FOR GBM
GBM receives too little attention and resources. A big part of what OurBrainBank does involves patient advocacy and raising awareness for GBM.
Through our patient-centred advocacy, we hope to inspire institutional, financial, medical and regulatory reform. Our GBM Bill of Rights, developed by those affected by GBM, is designed to empower people and inspire them to call for a better approach to GBM care.
Together with our allies and partners in other GBM and brain tumor organisations, we know that we are stronger together than apart. If we join forces we can ensure people with GBM have their voices heard.
Through our patient-centred advocacy, we hope to inspire institutional, financial, medical and regulatory reform. Our GBM Bill of Rights, developed by those affected by GBM, is designed to empower people and inspire them to call for a better approach to GBM care.
Together with our allies and partners in other GBM and brain tumor organisations, we know that we are stronger together than apart. If we join forces we can ensure people with GBM have their voices heard.
GBM BILL OF RIGHTS
The GBM Bill of Rights is our people-centered call to action. Developed by patients, alongside our families and advocates, this is the roadmap to patient power and a brighter future.
SUPPORT US
We need help developing the technology and recruiting people onto our new project. Please help us pave the way for more patient data-led research into GBM.
GBM BILL OF RIGHTS
The GBM Bill of Rights is our people-centered call to action. Developed by patients, alongside our families and advocates, this is the roadmap to patient power and a brighter future.
SUPPORT US
We need help developing the technology and recruiting people onto our new project. Please help us pave the way for more patient data-led research into GBM.
TARGETED CAMPAIGNS
OBB plans to focus on each one of the points flagged up in the GBM Bill of Rights and push for its fulfillment. We will not rest until we see improvements in each of the 11 rights.
OurBrainBank staff will be at the ASCO (American Society of Clinical Oncology) annual meeting in Chicago to present a poster about isolation and loneliness among GBM patients and care partners.
OurBrainBank staff will be at the ASCO (American Society of Clinical Oncology) annual meeting in Chicago to present a poster about isolation and loneliness among GBM patients and care partners.
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