UPDATE: we have finished collecting applications.

Researcher/Project Manager/Outreach Coordinator for Brain Cancer Non-profit

OurBrainBank is a start-up non-profit focused on glioblastoma (GBM), the deadliest of brain cancers. Seeking a full-time project manager/researcher/outreach worker to coordinate a major nationwide survey on disparities in glioblastoma treatment and to build our community of GBM patients and care partners.

Responsibilities: 

• Work with a market research company to develop a survey for GBM patients and their caregivers
• Lead our survey-related outreach work including finding people not online (eg in-person support groups)
• Coordinate with our Executive Director, board members and medical advisors
• Forge links with national, state and local brain tumor organizations and treatment centers
• Build connections with GBM families
• Increase our power as an advocacy group demanding more action for GBM
• Explore imaginative ideas about helping families, enriching our community, and growing our voice
• Other projects as needed

Qualifications: 

• College degree 
• Energetic, creative, passionate and compassionate, comfortable with cold-calling 
• Excellent writing, interpersonal, and organizational skills
• Proficiency in Google/Microsoft apps
• Experience in managing and executing projects and spearheading advocacy campaigns is a plus
• US resident
• Personal connection to GBM (or other brain cancer) also a plus

If interested, please write us. Salary range: $50,000 to $60,000 depending on experience; initial one-year contract; remote work

Full job description and background

OurBrainBank (OBB), a start-up non-profit focused on for glioblastoma (GBM) patients and their families, is looking to recruit a researcher/outreach worker/project manager to manage a major nationwide survey and to build our community across the country. We’re the only GBM-focused nonprofit conducting patient/caregiver led data collection and research.

GBM is the most aggressive form of brain cancer, yet it does not receive the attention and resources it demands. The five-year survival rate for GBM is an awful 5%, while only 5% of research proposals for clinical trials are successful. OurBrainBank is a voice for GBM families to say this is not good enough, there must be more action and more urgency, using our pioneering GBM Bill of Rights as a template. 

We are currently planning a major nationwide survey of GBM patients and their caregivers to cast light on the challenges and trauma that people with this diagnosis face today. We are seeking to illuminate the health disparities between different parts of the US, and between urban and rural areas. We want to reveal the vast inequality of experience between different families with the same disease, and find out if patients have access to genomic tumor testing, personalized treatments, or clinical trials. We also want to cast light on the difficulties families face in terms of quality of life while living with GBM. 

We will use this data to demand the best quality of care for all GBM patients.

To that end, we are looking for an energetic, creative, passionate individual who can spearhead and manage the survey. The successful candidate will lead our outreach work across the USA, working with OBB’s Executive Director, board members and medical advisers who will help and guide. They will forge links with national, state and local brain tumor organizations and hospitals, working alongside a market research company who we will contract, to reach as many GBM patients and their caregivers as possible. 

In compiling the survey list, the candidate will also help OBB develop our community, working with survey participants to build our connection with families and increase our power as an advocacy group demanding more action for GBM. Seeking a candidate with imaginative ideas about how those connections can be used into the future to help families, enrich our community, and grow our voice.

You may also be asked to research other areas and or manage other programs. 

OurBrainBank is a small non-profit with big ambitions, and the successful candidate will be encouraged to take initiative as part of a dynamic team.

Experience in managing and executing projects and spearheading advocacy campaigns would be a benefit. A personal connection to GBM again would be a plus though not essential; what is essential is a compassion for the journey GBM families are going through and a passion for change.